Last night was one of our hardest ever. Our nurse spent the entire night trying to figure out the best cocktail of pain medications for Soliz. He has a very high pain tolerance and somehow this translates to his body not responding to pain medications very well. I was told that if another child were on the amount of drugs that he is on they would be hard to rouse, as if in an induced coma. Not Soliz. At the moment he is on a Precedex drip, Tylenol as needed, Valium every 4 hours, Fentanyl every 2 hours and Zofran as needed. Even with this he seems to have waves of pain coming through is body. I was told tonight should be an easier night. This won’t be forever.
Tuesday, May 17, 2011
We arrived in the morning at 5am and passed Soliz off to the doctors at 7:30 am and then waited until 3pm to see him again. I could feel the high tension of the doctors anticipating this major surgery that my son was about to endure. Soliz was in amazing spirits during that waiting time. I was so nervous to have to wake him up so early in the morning (4:30am) to bath him one last time but he never fussed once. He just looked into the eyes of all the nurses and doctors; he seemed so joyful.